Sunday, January 27, 2008

This is My Brain on Drugs

This is my brain. Okay, it's an eraser in the shape of a brain. But it's mine.
And this is my brain on drugs....

I was speaking with someone the other day who first met me when I was MCing the local ALS Walk. ALS is easily one of the most cruel illnesses, and I happily lend my skills to fundraising for this cause. My friend and I were comparing ALS and MS. In the majority of cases ALS is a death sentence within a few years whereas MS is rarely fatal. ALS is continuously and quickly progressive from Day 1 whereas MS is much slower. MS is uncertain, a characteristic about which we MSers like to complain. We don't know what each day will bring. You know what? I realized that this characteristic is something I should celebrate. I may not know what's going to happen, but it just might be great. And I know I have many tomorrows left.

We humans like to be in control. Diseases like ALS and MS can quickly remove that control but we still try to assert some control. I do that by taking Avonex once a week. In my butt. The boyfriend sticks me with that needle after I take some Tylenol to battle the side effects. 4 hours later, around bedtime, I take more Tylenol, the 8 hour stuff, so I can sleep through the night. Usually the next morning, another dose and I'm set for another week.

I've been on the stuff for 8 years now and so far so good. I've had one minor relapse. Is it all because of the Avonex? No idea. I'm sure it has something to do with it, but as one of my neuros is quick to tell me, attitude is pretty important, too.

So as much as I, like the rest of humanity, don't like change, I will celebrate my ever changing disease and do what I can do to make a difference.



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VERY powerful message...thanks! Took a "detour" this weekend, so didn't get as much blog reading in as I would have liked...yours, especially. But, there's always tomorrow!

Linda D. in Seattle

Diane J Standiford said...

Here Here!

Shauna said...

It was another of life's light bulb moments.

Jim said...

You have made great point and I have added you to my list to come back to read your blog.