Wednesday, January 28, 2009
The first 4 months after diagnosis, I went in to the MS Clinic every week for my injection. It took me that long to work up the nerve to stick myself with a needle. The staff a the clinic were patient with me and let me come in until I was ready to do it myself.
Then my (now) ex came in to learn. He took to it like a duck to water. So for a couple of years I alternated injecting my thighs,and the ex would inject my butt and arms. When we split I ended up doing my thighs for 4 years.
After the Wookie and I had been dating for a year and a half, I asked him if he'd like to learn how to do it. I had noticed my thigh muscles seemed to be getting harder to inject, probably from scar tissue, and to be honest, I was tiring of doing it. I really wanted to stop. There was no pain, or next to none, from the injection itself, but the psychological part of it was really beginning to get to me. I just didn't want to do it any more. I didn't want to stop taking medication as I've been able to handle it for the most part, but I needed a break.
So the Wookie began giving me my shots. In the butt. Every week. It was like the weight of the world had been lifted from my shoulders. And so it has been for a couple of years now. Until last month. The Wookie was gone on business for one shot in December and two this month. Oh....my....God......
I discovered (again) how much I despised giving the shot to myself. I am still struggling with why I feel this way about a truly "non event". It's a simple thing to do, there's little discomfort and the side effects are quite manageable at this point. But I can't stand doing it.
The Wookie knows this. And when I get teary eyed about it and try to explain and then get frustrated because I don't know why, he just puts his arm around me and says, "I know". And he has explained that the shot once a week is his way of helping me cope. He's taking some of the burden from me, and as long as the needle isn't going into him, he's fine with it.
Again, a demonstration of how lucky I am. But we MSers may be getting a little more luck thrown our way with the announcement this week of an oral medication to treat MS. I know it is a cancer drug used to treat Hairy Cell Leukemia (HCL) and it has had a successful two year Phase 3 trial. The makers of the drug are hoping to have it on the market in 6 months.
I don't know what the recommendations are for this drug or the side effects or how often it has to be taken. I'm looking into that. I won't be going off the Avonex any time soon though. As long as I have the Wookie to give me the shot, I'll stick to what appears to work for me.
But I do look forward to the day when "Drop your drawers!" is a prelude to something a little more romantic.