Saturday, December 20, 2008

The Halifax Injector



I get excited about ordinary things sometimes. An unexpected cup of coffee from a listener on his way to work, an unexpected e-mail from a high school friend, a pleasant note left under my apartment door from a neighbour.

And I get excited when I hear about innovations and developments that occur in my city. This week, the Halifax Injector was finally revealed to the public. A surgical tool, the "device can be programmed by a touch screen to deliver precise quantities of stem cells to very specific areas deep inside the brain".

Over the years, the use of stem cells in the treatment of Parkinson's Disease has increased. Remember when Muhammad Ali had a fetal cell transplant to try and control his PD? We've come a long way since then and the Halifax Injector is another positive step.

You may be wondering about the mention of PD on what is basically an MS blog. First, there is PD on my dad's side of the family, two aunts having suffered and died from it, and a grandfather and an uncle with PD like symptoms (though to the best of my knowledge, they were never diagnosed with it). My mother and I have watched my father over the years for any tell tale symptoms (and I'm happy to say we haven't observed any).

Secondly, this instrument will have applications for drug delivery. Imagine being able to put a drug precisely where it is needed instead of injecting into a leg muscle and waiting for the body's systems to process the drug, losing some efficacy to metabolism.

Thirdly, the Injector was developed by a team of students, doctors, and researchers in fields of engineering, physics, medicine, and computer science. What a combination of minds! One of the students was just beginning his education in a local Community College when he joined the team and I can only imagine the impact his involvement will have on his future job prospects as an electrical engineering technologist.

I know one of the doctors on the team and hope to talk to him in the new year about the implications of this device on other neurological conditions.

Stay tuned!

S.

Tuesday, December 16, 2008

Pleading the Fifth




Today is the anniversary of the birth of one of my heroes; December 16th, 1770 marks the day Ludwig van Beethoven was born.

Growing up I was surrounded by classical music. My father had taken piano lessons as a child and I began when I was 8 or 9. Dad then took up the piano again. If we weren't on the piano, classical music was usually playing on the turntable or 8 track. Dad watched Bugs Bunny with me every Saturday at 5, though in later years I discovered it was because of the music soundtrack.

I didn't care for lessons too much, like most children, but I did enjoy playing. I learned studies by Bach, stupid little kids' type tunes, and sometimes Debussy. Dad took me to the music store so I could buy the sheet music to The Entertainer. I learned the Moonlight Sonata. My favourite Muppet Show episode is the one with Victor Borge, playing the Moonlight Sonata in his dressing room with an animated bust of Beethoven looking on. The two of them try to remain awake as he plays.

I recall trying to teach myself Beethoven's Fifth Symphony when I was 10 (no one told me I was too young to try it or that my hands were too small). I loved the opening of that piece so much (who doesn't, really) I was bound and determined to play it. I loved the power (of the opening) that it brought to my small body. I felt big and strong, able to take on anything.

There are scores (pun intended) of beautiful pieces that I enjoy and some composers who I usually like, though not always. But Beethoven has stuck with me through thick and thin. If I was feeling particularly romantic or sad, there was a piece to match my mood. And when I was feeling weak, I always had the Fifth to pick me up. And we often shared the same hairstyle.

Over the years, I have thought often of the man's life, his trials and tribulations, his illnesses, and of course his deafness. What a challenge to a musician! But even though his hearing worsened he continued to compose music. (In a bizarre way, it reminds me of the bit in the Monty Python movie where the knight has his arms and legs hacked off and he shouts to his attacker "Come back and I'll bite you to death!" That's determination.)

From wikipedia:

His Middle (Heroic) period began shortly after Beethoven's personal crisis brought on by his recognition of encroaching deafness. It is noted for large-scale works that express heroism and struggle, many of which have become very famous. Middle-period works include six symphonies (Nos. 3–8), the fourth and fifth piano concertos, the triple concerto and violin concerto, five string quartets (Nos. 7–11), the next seven piano sonatas (including the Waldstein and the Appassionata), the Kreutzer Violin Sonata and Beethoven's only opera, Fidelio.

I'm sure Beethoven would have agreed that his music expressed heroism and struggle, though I doubt he would have admitted that it was his own struggle and heroism that inspired other people.

S.

Saturday, December 13, 2008

In and On the Air




I mentioned in an early post that I was doing an interview as part of a report on local news for the End MS campaign. It aired this past Wednesday night and as soon as I have a copy that I can download I will post it. In the meantime, I can say that it the whole segment was done very well and I've had lots of positive feedback about it. Now newspaper wants in on the action. So I'll be doing that interview next week. I also know for sure I'll be able to post that on the blog.

One of the things that always concerns me when doing these interviews is that I don't look like I have anything wrong with me and that people may not get the message about how devastating MS can be. I always stress that I am one of the lucky ones and I am a best case scenario. I did receive an e-mail at work yesterday from someone I met a couple of years ago at a talk I was giving to other MSers. (And she's a listener, too, so that was nice.) She said it was good to see someone with MS in a positive light. So she saw me as I hoped people would see me.

One of the reasons I am a volunteer interviewee for the cause is that I work in the industry. I know the ins and outs of the media, sometimes I know the person on the other side of the camera or the microphone, and I am a public persona myself anyway. So if people can look at me and say "I recognize her. And she's got MS!" that stays with them. And I'm all about keeping MS in the public eye. Actually, at a station related appearance Thursday night, two people approached me and said they saw me on the TV interview.

The day after I was diagnosed a co-worker came to see me in the hospital. He told me he was hosting a fundraiser for the MS Society and did I want to come along. I said sure and at the dinner was introduced to the crowd. I told them I had been diagnosed 6 weeks earlier. So began my public campaign for MS awareness and education.

It's also a bonus for the company I work for in the form of good PR. They've gotta like that. I know I do.

S.

Monday, December 8, 2008

Share the Joy



In a small town in Eastern Pensylvannia is a group of Italian -Americans who by all appearances should have a rate of heart attacks equal to or greater than the general population. They don't. They don't have heart attacks.

How is this possible? In Malcolm Gladwell's book Outliers, he tells you a theory of why they don't have heart attacks. And it has to do with their social networks and support systems. In this particular community, everyone knows everyone else and are heavily involved in service and business groups. They would appear to have a very large and productive social support. This "mental" support system seems to offer some protection from a physical ailment.

The Wookie was telling me about this the other night as he's become a huge fan of Gladwell. He said a revelation occurred when he realized that everywhere we go, I end up stopping to talk with people, whether they are good friends or on the fringe of my network. I have been known to stop complete strangers and say, "You look familiar. Do I know you?" and I'm almost always greeted with "Yes, we met at such and such a place, or I used to work at the local coffee shop so I probably served you coffee". The Wookie is amazed at the number of people I know.

Admittedly, part of my huge network is because of my job as a radio announcer. Although more people know me than the other way around, I talk individually with a number of people every day on the phone. And I ask questions of them, too, even if they've called a wrong number and got me. (The wrong number callers usually turn out to be really funny) So in a way, I am deliberately expanding my network as I work. I have a list of names and phone numbers of various people I've talked to over the years in my capacity as an announcer, but who may be a future source of information about something in which I am interested. Or who may provide a service I know I will need in the future, like oil changes or the guy who works in the records department for the city, or the woman who works at Statistics Canada, or the woman who works for Parks and Conservation.

I have been chatting with a fellow about twice a week for the past couple of months now who is a driver for a business in town. He calls with traffic tips and sometimes a request for a song. He and I are now Facecrack friends, too, and over the course of our chats he knows about my involvement with the MS Society and will be supporting my fund raising in the new year and hopefully so will his employer. Cool, eh?

The point of all this writing about networking is that I have a huge network. And I'm really a happy person. Does my happiness lead to a larger network? Or does my network lead to my happiness? I don't care. They feed each other.

Speaking with an acquaintance the other day who has some health issues of her own, she said the first time we chatted she was terrified of speaking with me. !! She finds public speaking and meeting new people really difficult. I would never have known this unless she had told me as she came off as smart and funny and someone I'd like to get to know better. She is currently in a difficult legal situation that is exacerbating her physical health and one of the things I suggested she do is expand her social network. And that's exactly what she's been doing recently. When friends invite her out she goes. She's forcing herself to go outside of her comfort zone in order to assist her health and recovery.

A recent study came out about happiness. The more people you know who are happy, the more likely it is that you are happy. And if your friends' friends are happy, that works, too.

Positive social connections seem to have a positive impact on your health by reducing stress or perhaps enabling you to deal with it in a better way. And happiness is contagious.

All this information is important because when we become disabled, from MS or any other chronic illness, we are sometimes shut off socially from our friends or co-workers. It can become a chore to get dressed, cleaned up, and onto a handicapped accessible bus to get to a destination, when before we just jumped in the car. Places we used to go to may not be as easy to maneuver through. Because of financial demands, dinner out with friends may not be feasible. Some folks have to retire early or quit work because of disability and immediately lose that particular social network. So it is vital to maintain what social networks we have already built, as well as encourage others to be formed. Our mental health and sometimes our physical health may depend on it.

In previous posts I have written about the neural connections we make in our brains. Those are actual physical connections from one nerve cell to another, and they are necessary to learn, for memory, and for our physical health. Just as we must work at continuing to make these physical connections through mental and physical exercises, so to must we continue to make and maintain our social connections for mental and physical health.

Or, as I like to say, Share the joy!

S.

Pretty as a Picture



Last night we had our staff Christmas party. It was quite pleasant, with most people dressed to the nines. I don't wear dresses or skirts very often and even when doing a public appearance on behalf of the station I am wearing a t-shirt or tailored shirt with the station logo on it. On my feet I usually have sneakers or my kind-of cowboy boots (kind of but not quite cowboy boots). In the summer I am even more casual with shorts and sometimes sandals.

So to say I gave everyone a shock last night is an understatement. And I loved every moment.

Heh.

And of course, the Wookie was gorgeous, too.

S.

Friday, December 5, 2008

Busy as a....

It's been an incredibly busy week. It started Monday morning with a talk for the Occupational Therapy students at Dalhousie Univerity. I've been doing this talk for a few years now and thoroughly enjoy sharing my experiences with MS with these kids. (OK, they're not kids)

Monday evening I did some voice work for a video to introduce folks to a new kind of insulin pump. I managed to get in some Christmas shopping and a few chores over the next couple of days, attend a wake for a friend's mother, and yesterday did a TV interview for a feature (about End MS) to run on the regional supper hour news program. It'll air next week.

The EndMS campaign has been under way in Canada since September, but only recently launched in Nova Scotia. So, as the EndMS spokesperson for Halifax (actually, the person-with-MS spokesperson), media are directed to me for interviews. The journalist who interviewed me was actually an intern at my station a few years ago.

The next few weeks will see us in high gear for public appearances and work related events; this time of year is busy for us. And the Wookie is still traveling for work, but next week will be going further afield.

The weekend will be busy as well with a couple of work related events tomorrow and then our staff Christmas party on Sunday. Posting will no doubt be light for the next few weeks, though I hope to have pictures to show off my new dress for the party.

S.

Tuesday, December 2, 2008

Sunday Morning Coming Down



During the two World Wars supply and fighting ships had safety in numbers as they headed east across the Atlantic. The gathered in the Bedford Basin (the northen most part of the Halifax Harbour) and then sailed east. These convoys filled basin, as observed in the picture above from the Archives of Canada. The picture was taken looking south. The narrowest part of the harbour is visible in the picture, the site of the Halifax Explosion. And in the top of the picture is MacNab's Island.

Admiral Harry DeWolfe was born in Bedford and went on to become one of Canada's greatest naval officers for his role during World War 2. There is a park on the Bedford waterfront named after him. I often walk along the waterfront, including this past Sunday morning as the sun was coming up. It was cool and calm.




I walked up the hill from the park (I hate hills) and was rewarded with a spectacular view of the basin and harbour, the bridges in the distance, and absolute peace.



S.