At a recent river restoration outing (we were clearing river rocks and silt from below a digger log to form a deeper pool for the fish), I was speaking with a fellow volunteer about going back to school. He was saying that it can be a difficult thing to be in a classroom again after so much time. Not for me, I don't think. My mother took courses all the time I was in school, and when I was 13 she began a degree program. (I used to go with her to classes and labs when I was off from school myself) She finished a 4 year program in 3 years by taking courses during the summer. A little over 20 years ago, my dad took a computer course at the local technical university (I got him a lunch box, crayons, an eraser, and other "supplies" as a joke). Over the years, I have taken the odd course (Russian being one of them) and while some of it was a little tedious, I enjoyed the majority of my time in class.
Several years ago, I became a volunteer tutor with a literacy group, tutoring adults (mostly at the GED level) in a one on one situation. The best part of that was watching the light bulb go on above their heads when they had that "aha!" moment - math was especially fun. I'm looking forward to my own "aha!" moments. And when speaking with my fellow river volunteer, I told him I was looking forward to feeding off the energy of my fellow classmates. Kids in their early 20s have so much energy and excitement, especially in a learning environment, that I suspect it will be a tremendous motivator and aid for me.
I was speaking with the mayor of Halifax a little while ago and telling him about going back to school. He also took some courses recently and said it's a different experience when you're a grown-up. I told him (and my folks) it'll be easier for me in one way, as I don't have two teenagers, and all that angst, as a distraction.
Yesterday, I went to get my school ID and parking pass, and then went to sign all the official papers with the government agency who are aiding my return to school. I have had the example of lifelong learning all of my 47 years. I have the support of the Wookie and my folks and friends. I even have some support from the government. I'm ready for school! Now to survive the arrival of hurricane Earl overnight tonight.
S.
Friday, September 3, 2010
Friday, August 20, 2010
School and Learnin' Stuff
The summer is beginning to wind down and the kids are getting ready for back to school. Me, too. I start at the community college September 7th now that everything is settled. I finally got confirmation of funding this week and am doing the last few things required of me by the government. It has been a long drawn out process with a lot of wailing and gnashing of teeth (mostly on my part, but I'm sure a little bit on theirs, too).
The gig at the radio station didn't work out as was becoming quite apparent in my last two weeks there. I gave them my notice after they hired someone else. Just as well, to be honest, as these folks were not to be trusted. There was such a culture of defeat in that office, with folks working for just above minimum wage, and the lack of communication between departments, I'm surprised they are still in business. They do have the worst reputation in the business and now I know why.
So this week, I have been "supervising" the installation of new windows on the first floor. The building is keeping me busy.
The Wookie and I went to his step sister's wedding two weeks ago. It was absolutely wonderful, in a spectacular location, and the bride and groom were just gorgeous and beaming. The two of them will make a great tag team, as both are med students with an interest in global health issues and a penchant for travel. I have said that I suspect the new Mrs. Doc will one day head the WHO (I don't know Mr. Doc as well, but imagine he'll be right up there with her). And the Wookie's half sister, who was the maid of honour, did her job perfectly, looking like a million bucks at the same time. I'm not sure what the maid of honour's plans are for the future, as she has had an interest in criminology in the recent past, but I haven't spoken with her about it for a while. (I will probably refer to her as Miss CSI until informed otherwise)
The bugs are alive and well in the neighbourhood. I have found a good number of creepy crawlies around, sometimes taking them inside for a photo shoot, then back to the wilds of the garden. A chartreuse crab spider has taken up residence in a tall white flower that smells like lily of the valley. I discovered it by accident as I leaned over to smell the newly opened blossoms and it insolently reared up on two sets of back legs with the two sets of front legs raised in an offensive position. OK, it was really defensive, but these spiders are so small, I laugh every time they do this, and imagine it's an act of bravado rather than instinct (like they could really fight off a predator as large as myself - confidence is everything I guess).
On the CCSVI front, my former boss is scheduled to go to Mexico for the treatment. The Nova Scotia government, taking a cue from other provinces has said it's interested in partly funding clinical trials if the federal government steps in. The Wookie and I are at a slight disagreement over this recent announcement, but it's more about semantics. The message I got was that the province is interested in clinical trials of the procedure, whereas he got the message that the government is interested in research in the broad sense. I do not want to see trials of the procedure until it's been demonstrated that a clear and defined link exists between CCSVI and MS.
That opinion will make me unpopular with all the folks who are demanding government action. Even Dr. Zamboni has been telling folks to wait for more research before going for the procedure. But as I have explained to people ad nauseum, if I thought there was anything to this treatment I would have had it already. I will not rely on anecdotal evidence to dictate medical treatment of any condition I may have and I cannot support others in seeking out this treatment. I do not wish anyone any harm and hope that they can gain some relief.
Here's a question to ponder: how many people are disabled by the thought of MS? There are some folks out there, who, when given the diagnosis of a chronic disabling condition, sit down and give up. Over time, depression leads to inactivity, which leads to fatigue, which leads to disability. They essentially give up on life in general and allow others to look after them. This topic has been on my mind for a while. I have met folks over the years who love to play the "poor me" card. I'd love to know how many of those folks are going for the "liberation" treatment instead of living a healthy lifestyle (that includes movement).
CCSVI may be a red herring. Or it may be the key to it all. Whatever it turns out to be, further research is on the agenda. I'm just sad that folks are so desperate they are jumping on this bandwagon like the "vaccines cause autism" lobby did. Even in the face of scientific evidence to the contrary, that group continued to believe what they believed. I'm afraid that this is what may happen to the believers in this group.
S.
The gig at the radio station didn't work out as was becoming quite apparent in my last two weeks there. I gave them my notice after they hired someone else. Just as well, to be honest, as these folks were not to be trusted. There was such a culture of defeat in that office, with folks working for just above minimum wage, and the lack of communication between departments, I'm surprised they are still in business. They do have the worst reputation in the business and now I know why.
So this week, I have been "supervising" the installation of new windows on the first floor. The building is keeping me busy.
The Wookie and I went to his step sister's wedding two weeks ago. It was absolutely wonderful, in a spectacular location, and the bride and groom were just gorgeous and beaming. The two of them will make a great tag team, as both are med students with an interest in global health issues and a penchant for travel. I have said that I suspect the new Mrs. Doc will one day head the WHO (I don't know Mr. Doc as well, but imagine he'll be right up there with her). And the Wookie's half sister, who was the maid of honour, did her job perfectly, looking like a million bucks at the same time. I'm not sure what the maid of honour's plans are for the future, as she has had an interest in criminology in the recent past, but I haven't spoken with her about it for a while. (I will probably refer to her as Miss CSI until informed otherwise)
The bugs are alive and well in the neighbourhood. I have found a good number of creepy crawlies around, sometimes taking them inside for a photo shoot, then back to the wilds of the garden. A chartreuse crab spider has taken up residence in a tall white flower that smells like lily of the valley. I discovered it by accident as I leaned over to smell the newly opened blossoms and it insolently reared up on two sets of back legs with the two sets of front legs raised in an offensive position. OK, it was really defensive, but these spiders are so small, I laugh every time they do this, and imagine it's an act of bravado rather than instinct (like they could really fight off a predator as large as myself - confidence is everything I guess).
On the CCSVI front, my former boss is scheduled to go to Mexico for the treatment. The Nova Scotia government, taking a cue from other provinces has said it's interested in partly funding clinical trials if the federal government steps in. The Wookie and I are at a slight disagreement over this recent announcement, but it's more about semantics. The message I got was that the province is interested in clinical trials of the procedure, whereas he got the message that the government is interested in research in the broad sense. I do not want to see trials of the procedure until it's been demonstrated that a clear and defined link exists between CCSVI and MS.
That opinion will make me unpopular with all the folks who are demanding government action. Even Dr. Zamboni has been telling folks to wait for more research before going for the procedure. But as I have explained to people ad nauseum, if I thought there was anything to this treatment I would have had it already. I will not rely on anecdotal evidence to dictate medical treatment of any condition I may have and I cannot support others in seeking out this treatment. I do not wish anyone any harm and hope that they can gain some relief.
Here's a question to ponder: how many people are disabled by the thought of MS? There are some folks out there, who, when given the diagnosis of a chronic disabling condition, sit down and give up. Over time, depression leads to inactivity, which leads to fatigue, which leads to disability. They essentially give up on life in general and allow others to look after them. This topic has been on my mind for a while. I have met folks over the years who love to play the "poor me" card. I'd love to know how many of those folks are going for the "liberation" treatment instead of living a healthy lifestyle (that includes movement).
CCSVI may be a red herring. Or it may be the key to it all. Whatever it turns out to be, further research is on the agenda. I'm just sad that folks are so desperate they are jumping on this bandwagon like the "vaccines cause autism" lobby did. Even in the face of scientific evidence to the contrary, that group continued to believe what they believed. I'm afraid that this is what may happen to the believers in this group.
S.
Friday, August 6, 2010
Pictures (Finally!)
As promised, some pics:
First a mosquito larva at 10 times magnification:
Now a little stag beetle (of which there are many species and sizes). The pinchers are actually used for wrestling other male stag beetles, if it comes to that. Generally, though, they're more for show than anything, as a stag beetle with smaller pinchers will cede to the one with the larger pinchers. This pic is also 10 times magnification and is lit from the bottom so you get a better idea of the shape of it.
From one of my CSI: Bug files is this wing of a small fly that had fallen prey to a spider. As I was moving it around under the microscope lens, light was being refracted most beautifully.
And finally, a couple of pictures of the team (without me, I'm afraid - I had already been riding for an hour when the rest of them got to the start). See why we took home the Best Dressed title?
I'm still working, though only for another week. I have paid my tuition, so officially, I'm a student again. In another week or so I'll get my class schedule, photo id, books etc. and then enter the land of the learning.
Oy vey.
S.
First a mosquito larva at 10 times magnification:
Now a little stag beetle (of which there are many species and sizes). The pinchers are actually used for wrestling other male stag beetles, if it comes to that. Generally, though, they're more for show than anything, as a stag beetle with smaller pinchers will cede to the one with the larger pinchers. This pic is also 10 times magnification and is lit from the bottom so you get a better idea of the shape of it.
From one of my CSI: Bug files is this wing of a small fly that had fallen prey to a spider. As I was moving it around under the microscope lens, light was being refracted most beautifully.
And finally, a couple of pictures of the team (without me, I'm afraid - I had already been riding for an hour when the rest of them got to the start). See why we took home the Best Dressed title?
I'm still working, though only for another week. I have paid my tuition, so officially, I'm a student again. In another week or so I'll get my class schedule, photo id, books etc. and then enter the land of the learning.
Oy vey.
S.
Tuesday, July 27, 2010
Here I Am!
Where to start?
I am in the land of the living, I've just not had a lot of time on my hands of late.
First of all, I am now employed (temporarily) for another radio station (country and western!!) in town. This may or may not be permanent. I can't get into details at the moment, but suffice to say, it was like getting on the bike again. It all came back to me fairly quickly.
Secondly, I had two falls from my bike, 3 weeks apart, same body part injured both times. Of course it was when I was at a complete stop and couldn't get out of my clips fast enough, so the damage done was minimal (my pride suffered a greater bruising than my knee - though there was blood; the little kid watching me clean up the scrape asked me to show him my other boo boos). I took the bike in for servicing and had them loosen and grease the pedal clips and lo and behold a week later, I came to a sudden stop when my derailleur caught my spokes, and I was able to easily hop off the bike. So back to the shop it went for fixing and that meant I had a couple of days more where I wasn't training.
In between all this falling, scraping, and working, I was trying to do some last minute fund raising for the bike tour. I finally hit the $3000 mark (and change) and our team, the Cycledelics was third runner up for team total and individual average. I also was in charge of securing a sponsor for our shirts and I called on my philanthropist friend, Mickey MacDonald, of Micco Corp or Inc or Ltd (I'm not sure which it is). He's a former firefighter and our theme was firefighting, so......Anyway, his company made up our shirts and we took home the Best Dressed Award. We even had a real fireman on our team and he brought a hose to he tour that we dragged to the banquet for our grand entrance. We all had little fire helmets on, too. Pics are coming.
Day one of the bike tour was pretty good, though by 11:30, it was 30 degrees(Celsius, for my American friends) and with only 6 kilometres left to bike I had to pack it in. A shower and a short nap later and I was wandering around in my jammies until the banquet when we all changed into our firefighting gear again.
Day two was bad. I woke feeling like I'd been hit by a truck and my eyes were so puffy I looked like I had been crying all night. I got on the bike to ride it from the storage area to the cafeteria for breakfast and I knew after one bump I wouldn't get one kilometre on the thing, my inner thighs and but were sooooooooooooooooooooooo sore. I made the executive decision to skip riding on the second day, so loaded my bike into someone's van and got a ride to the halfway point to meet up with the team. There were support vehicles going up and down the road constantly so I had no fear of being left somewhere to fend for myself. I eventually got a ride back to the end where I cheered on folks arriving by bike as they crossed the finish line. The heavens had opened up and the wind had picked up so everyone was soaked and frozen. Just as well I wasn't riding. Between the wind and rain and the butt spasms, I might have just curled up on the side of the road waiting for the end to come. Everyone else on the team managed to do both days, but there were a few other folks like me who bowed out of riding on the second day. Over 400 riders, about 75 volunteers, and $330,000 raised. I'd say it was a success.
In the past 6 weeks there have been a couple of more news stories about CCSVI. I will not comment right now, but will in a future post.
The bug hunting has continued, though not as regularly as before, and I do have pics. I'm working on another CSI: Bugs episode, too. Those pics are coming, too.
And in between all this stuff is the building I'm managing....
That's all I have time for right now. I'll be back to regular posting real soon. I promise.
S.
I am in the land of the living, I've just not had a lot of time on my hands of late.
First of all, I am now employed (temporarily) for another radio station (country and western!!) in town. This may or may not be permanent. I can't get into details at the moment, but suffice to say, it was like getting on the bike again. It all came back to me fairly quickly.
Secondly, I had two falls from my bike, 3 weeks apart, same body part injured both times. Of course it was when I was at a complete stop and couldn't get out of my clips fast enough, so the damage done was minimal (my pride suffered a greater bruising than my knee - though there was blood; the little kid watching me clean up the scrape asked me to show him my other boo boos). I took the bike in for servicing and had them loosen and grease the pedal clips and lo and behold a week later, I came to a sudden stop when my derailleur caught my spokes, and I was able to easily hop off the bike. So back to the shop it went for fixing and that meant I had a couple of days more where I wasn't training.
In between all this falling, scraping, and working, I was trying to do some last minute fund raising for the bike tour. I finally hit the $3000 mark (and change) and our team, the Cycledelics was third runner up for team total and individual average. I also was in charge of securing a sponsor for our shirts and I called on my philanthropist friend, Mickey MacDonald, of Micco Corp or Inc or Ltd (I'm not sure which it is). He's a former firefighter and our theme was firefighting, so......Anyway, his company made up our shirts and we took home the Best Dressed Award. We even had a real fireman on our team and he brought a hose to he tour that we dragged to the banquet for our grand entrance. We all had little fire helmets on, too. Pics are coming.
Day one of the bike tour was pretty good, though by 11:30, it was 30 degrees(Celsius, for my American friends) and with only 6 kilometres left to bike I had to pack it in. A shower and a short nap later and I was wandering around in my jammies until the banquet when we all changed into our firefighting gear again.
Day two was bad. I woke feeling like I'd been hit by a truck and my eyes were so puffy I looked like I had been crying all night. I got on the bike to ride it from the storage area to the cafeteria for breakfast and I knew after one bump I wouldn't get one kilometre on the thing, my inner thighs and but were sooooooooooooooooooooooo sore. I made the executive decision to skip riding on the second day, so loaded my bike into someone's van and got a ride to the halfway point to meet up with the team. There were support vehicles going up and down the road constantly so I had no fear of being left somewhere to fend for myself. I eventually got a ride back to the end where I cheered on folks arriving by bike as they crossed the finish line. The heavens had opened up and the wind had picked up so everyone was soaked and frozen. Just as well I wasn't riding. Between the wind and rain and the butt spasms, I might have just curled up on the side of the road waiting for the end to come. Everyone else on the team managed to do both days, but there were a few other folks like me who bowed out of riding on the second day. Over 400 riders, about 75 volunteers, and $330,000 raised. I'd say it was a success.
In the past 6 weeks there have been a couple of more news stories about CCSVI. I will not comment right now, but will in a future post.
The bug hunting has continued, though not as regularly as before, and I do have pics. I'm working on another CSI: Bugs episode, too. Those pics are coming, too.
And in between all this stuff is the building I'm managing....
That's all I have time for right now. I'll be back to regular posting real soon. I promise.
S.
Tuesday, June 22, 2010
3 Billion Rides
Sometimes the most bizarre thoughts will pop into my head. Which is probably no surprise to anyone. I realize that most people have weird ideas from time to time; they can't be original thoughts, either. Very few of those left in the world, I suspect.
I once heard or read that the human heart has the capacity for only so many beats. In an average 80 year lifespan it will beat about 3 billion times. Does that mean if you exercise a lot and increase your rate of heartbeats, you'll die sooner? Exercise strengthens the heart, so your resting heartrate will be lower, so the number of heartbeats will even out in the end (I think that's how it would work).
When you live with a diagnosis of MS and one of your symptoms is fatigue, you learn to pace yourself in your day to day activities. Come to think of it, sometimes week to week or month to month. You don't do laundry on the same day that you shop for groceries, for example.
So after Sunday's 21 k bike ride, I was thinking, "What if I have a finite number of long bike rides in me?" Say, 100. Do I get more and more fatigued with each ride until I've reached the finite number and can't ride any more?
Like I said at the beginning, bizarre thought. However, after mulling it over, I think I've rationalized it to this: Each ride will build my physical strength. The exercise is good for both body and brain (increased oxygenation, better circulation of nutrients). My eating habits have improved, so my nutrition is better, and my overall health is improving. And I know that if my overall health is good, my brain is better able to deal with the MS. So if I hit a wall from fatigue, taking a day or 3 or 4 off is not going to set me back. I can get back on the bike and do a couple of shorter rides, then a big one again. After all, marathon runners don't run a marathon every day for training.
I suspect a day will come when a genetic test will determine what number of heartbeats a person is predetermined to have. A full screening at birth will tell us if we are destined to live to 100 or 25. 10 years ago the average lifespan for a person with cystic fibrosis was 18 years. Today it is 35 (last year I met a CF patient who was 40). We will be able to determine and treat conditions in order to extend lifespans; actually, we already do that to a degree. If we are diagnosed with a treatable disease, we take medicines or alter our lifestyle to enable us to not be as affected by our disease. But a day will come when we find out at birth (if not prenatally).
So how many long bike rides do I have in me? Ask me when I'm 80.
I once heard or read that the human heart has the capacity for only so many beats. In an average 80 year lifespan it will beat about 3 billion times. Does that mean if you exercise a lot and increase your rate of heartbeats, you'll die sooner? Exercise strengthens the heart, so your resting heartrate will be lower, so the number of heartbeats will even out in the end (I think that's how it would work).
When you live with a diagnosis of MS and one of your symptoms is fatigue, you learn to pace yourself in your day to day activities. Come to think of it, sometimes week to week or month to month. You don't do laundry on the same day that you shop for groceries, for example.
So after Sunday's 21 k bike ride, I was thinking, "What if I have a finite number of long bike rides in me?" Say, 100. Do I get more and more fatigued with each ride until I've reached the finite number and can't ride any more?
Like I said at the beginning, bizarre thought. However, after mulling it over, I think I've rationalized it to this: Each ride will build my physical strength. The exercise is good for both body and brain (increased oxygenation, better circulation of nutrients). My eating habits have improved, so my nutrition is better, and my overall health is improving. And I know that if my overall health is good, my brain is better able to deal with the MS. So if I hit a wall from fatigue, taking a day or 3 or 4 off is not going to set me back. I can get back on the bike and do a couple of shorter rides, then a big one again. After all, marathon runners don't run a marathon every day for training.
I suspect a day will come when a genetic test will determine what number of heartbeats a person is predetermined to have. A full screening at birth will tell us if we are destined to live to 100 or 25. 10 years ago the average lifespan for a person with cystic fibrosis was 18 years. Today it is 35 (last year I met a CF patient who was 40). We will be able to determine and treat conditions in order to extend lifespans; actually, we already do that to a degree. If we are diagnosed with a treatable disease, we take medicines or alter our lifestyle to enable us to not be as affected by our disease. But a day will come when we find out at birth (if not prenatally).
So how many long bike rides do I have in me? Ask me when I'm 80.
Sunday, June 20, 2010
Porcupine Crossing
Gas stations are great places to find bugs. They have these really big lights that are on at night attracting all sort of insect. Yesterday morning I raided the local station and retrieved a polyphemus and an azalea sphinx. Just beautiful specimens - which are now napping in my freezer until tomorrow when I will preserve them for posterity (actually, for my own amusement and study). Pics in the very near future, dear reader.
Today, the Wookie and I went on a 21 k ride, half on a trail, the other half back to the car on the highway. On the trail, I nearly ran over a porcupine that hadn't looked both ways before attempting to cross. It waddled off into the trees while I stopped to get my camera. I managed a few shots of it in the tree. These adorable animals have poor eyesight and not great hearing; they don't really need those senses too much anyway, what with all the sharp pointy things sticking out of their fur. Anyway, I had to get a pic for Lisa (I think), who last year was disappointed that I hadn't posted a pic of the one crossing a street that I had stopped for.
We left the trail just short of the end as I could see the ocean down a drive that crossed the trail and wanted to be next to the water. It was about 2k on that road to the main highway, then 9 more to the car. I took a couple of pics of the beach on one side, and pics of a fresh water marsh on the other side of the road. The marsh had several pitcher plants and a few clumps of blue flag irises. I had noticed both plants along the trail as well, though not as many pitcher plants (they are a protected species).
All in all it was a good ride, lots of sweat dripping everywhere and a few drops of rain from time to time to tease us. I was wishing the skies would just open up to cool us down. Then off to mom and dad's to wish a dad a Happy Pappy Day. He was happy with the gifts, of course. "Don't be spending your money on me" is a quote to be ignored.
S.
Today, the Wookie and I went on a 21 k ride, half on a trail, the other half back to the car on the highway. On the trail, I nearly ran over a porcupine that hadn't looked both ways before attempting to cross. It waddled off into the trees while I stopped to get my camera. I managed a few shots of it in the tree. These adorable animals have poor eyesight and not great hearing; they don't really need those senses too much anyway, what with all the sharp pointy things sticking out of their fur. Anyway, I had to get a pic for Lisa (I think), who last year was disappointed that I hadn't posted a pic of the one crossing a street that I had stopped for.
We left the trail just short of the end as I could see the ocean down a drive that crossed the trail and wanted to be next to the water. It was about 2k on that road to the main highway, then 9 more to the car. I took a couple of pics of the beach on one side, and pics of a fresh water marsh on the other side of the road. The marsh had several pitcher plants and a few clumps of blue flag irises. I had noticed both plants along the trail as well, though not as many pitcher plants (they are a protected species).
All in all it was a good ride, lots of sweat dripping everywhere and a few drops of rain from time to time to tease us. I was wishing the skies would just open up to cool us down. Then off to mom and dad's to wish a dad a Happy Pappy Day. He was happy with the gifts, of course. "Don't be spending your money on me" is a quote to be ignored.
S.
Thursday, June 17, 2010
I'm Here!!
I have been amazingly lax the past few weeks as far as the blog goes. You should go make yourself a cup of tea before you sit down to read the rest of this post.
I really have put the push on for getting donations for the Bike Tour since I don't have the support of a "work" network this time 'round. So that's been keeping me hopping. Though I did have one really good experience at the grocery store last week. A man in line in front of me commented on the bike tour jacket I wear and asked if I did the bike tour. Turns out he had been invited to participate with some friends but is unable to do so. I told him he could help out just the same by sponsoring me. So he found a bank machine to get some money to give me. I took down his name and address of course so he can get a tax receipt, but while waiting at the bank machine I told him I felt like I was shaking him down. He laughed, gave me 20 bucks and next year he may bike with my team instead of his friend's.
I have been in "serious" training for the tour as well. I have made a few short but heavy duty rides, lots of hills to work the legs. I am very pleased with my progress, getting up these hills with fewer stops, increasing my kilometres per hour average, and generally building strength in my legs. I have also fallen off the bike twice in the past 3 weeks, both times (as usual, actually) when I was coming to a stop. Last Sunday I'm afraid the spill I took drew a little more blood than usual, and two little boys watched intently as I administered my own first aid. The older of the two had questions for me about my "boo boo" and asked me to show him my other ones (after he showed me his). They were too cute for words and their mother pointed out the fact that I had a first aid kit with me which she informed them is always a good idea when going on a long bike ride. Come to think of it, it's a good idea for me to always have a first aid kit....I had to replenish my first aid supplies after the ride.
I took my bike in yesterday for its 1000k tune up. When the guy working at the shop saw me, I just showed him my bandaged knee and he said, "Again?". They put a new chain on the bike and tuned it up for me, as well, they have checked my pedal clips and hopefully loosened them (that's why I fall - can't get unclipped fast enough).
A couple of weeks ago, the majority of Canadian MS Walks were held. The Wookie, Margo, Marc, and I walked as a team, going 8 kilometres by foot. I had hoped to have a team picture to show you by now, but don't so you'll just have to wait. It was definitely fun and good to catch up with a number of people including the Sackville Kinsmen Club who are holding their car show again this year and asked me to set my bike up again. That's on the 27th.
About a week ago, one of the local tv stations ran a story about a local woman who is trying to raise money so she can go overseas and get the "liberation" treatment. Don't get me started. but what irked me was that she yanked her team from the MS Walk in protest of the fact that the MS Society is not lobbying the government to pay for this procedure. That angered me more than anything else I've heard recently. The MS Society of Canada along with the NMSS in the US has designated 2.4 millions dollars to study CCSVI and the link it appears to have with MS (this was announced just last week). It will not be funding surgical procedures at this point because we don't know if there is a link between the two. Depending on the outcome of these initial studies, then perhaps the "liberation" procedure itself will be studied.
The media still hasn't caught on to the fact that the theory behind CCSVI is that a build up of iron in the brain because of closed off veins is what causes MS. If there are iron deposits in the brain it would take more than half an hour to clear them from the brain, but half an hour seems to be the length of time between having the procedure performed and noticing a difference in MS symptoms.
So why do some people report miraculous results from this procedure? There are a number of factors at play including the Placebo Effect, not to mention improved circulation of blood in the brain. We all know that improving the circulation of blood in the brain is going to be good for you. My thoughts about miraculous improvements all involve improving oxygenation and toxin removal (by toxin, I mean cellular byproducts like waste). So until the folks who have had the procedure done can show measured reduction in MS symptoms over a period of time, I stand by my idea that this treatment is not an effectual one. Not for MS, anyway. It may be an effectual treatment for a vascular condition that many people without MS have. I would love to have this treatment proven to be an effective one for MS. But you must show me the scientific evidence first.
A couple of days ago, I was one of three people on a panel for a presentation to a group of health professionals about what it's like to be a research participant. It was part of a series of lunch hour sessions set up for health workers in the Capital District Health Association (which covers all of Halifax and surrounding areas). It was teleconferenced to other sites as well in 4 or 5 other hospitals. Most of the questions had to do with how we felt as "guinea pigs", why we agreed to be in a clinical study and our likes and dislikes about the experience. All three of us were quite positive about our feelings and how we were treated. Learning why we participated was important for these folks to hear as it helps them determine how to ask future participants to be in studies. It was a very cool experience for me as I had never really given any thought to other participants' reasons for being in a study, only mine; I'm curious, I need to know stuff (which they thought was funny). One panelist was given a drug in a different form that was being measured to see if it was more effective or just as effective as it's regular form. The other panelist was in a similar type study. In my case, in my first trial, this was one of the first disease modifying drugs (the other being Copaxone) for MS. Plus, I was in a Phase 3 trial which had the chance of me being on a placebo. The other studies have involved the course of my MS or looking for genetic markers, so have involved MRIs and blood work (both now a walk in the park for me).
And finally, on the bug front, it's almost SUMMERTIME!! Which means warmer evenings and lots of night time bugs. Like june bugs, face down on the pavement trying to drill their way to China. Or carrion beetles searching for meals. Or moths beating themselves against the building under the security lights - picture me below the lights after dark with my net in hand just waiting for them to get within reach. I retrieved a beautiful hawk moth last night which spent the day in my freezer. Taking a nap. In a couple of days I'll take him out, photograph him and preserve him. Pictures will be up before too long of my latest finds.
I promise not to be so lax from now on. Really.
S.
I really have put the push on for getting donations for the Bike Tour since I don't have the support of a "work" network this time 'round. So that's been keeping me hopping. Though I did have one really good experience at the grocery store last week. A man in line in front of me commented on the bike tour jacket I wear and asked if I did the bike tour. Turns out he had been invited to participate with some friends but is unable to do so. I told him he could help out just the same by sponsoring me. So he found a bank machine to get some money to give me. I took down his name and address of course so he can get a tax receipt, but while waiting at the bank machine I told him I felt like I was shaking him down. He laughed, gave me 20 bucks and next year he may bike with my team instead of his friend's.
I have been in "serious" training for the tour as well. I have made a few short but heavy duty rides, lots of hills to work the legs. I am very pleased with my progress, getting up these hills with fewer stops, increasing my kilometres per hour average, and generally building strength in my legs. I have also fallen off the bike twice in the past 3 weeks, both times (as usual, actually) when I was coming to a stop. Last Sunday I'm afraid the spill I took drew a little more blood than usual, and two little boys watched intently as I administered my own first aid. The older of the two had questions for me about my "boo boo" and asked me to show him my other ones (after he showed me his). They were too cute for words and their mother pointed out the fact that I had a first aid kit with me which she informed them is always a good idea when going on a long bike ride. Come to think of it, it's a good idea for me to always have a first aid kit....I had to replenish my first aid supplies after the ride.
I took my bike in yesterday for its 1000k tune up. When the guy working at the shop saw me, I just showed him my bandaged knee and he said, "Again?". They put a new chain on the bike and tuned it up for me, as well, they have checked my pedal clips and hopefully loosened them (that's why I fall - can't get unclipped fast enough).
A couple of weeks ago, the majority of Canadian MS Walks were held. The Wookie, Margo, Marc, and I walked as a team, going 8 kilometres by foot. I had hoped to have a team picture to show you by now, but don't so you'll just have to wait. It was definitely fun and good to catch up with a number of people including the Sackville Kinsmen Club who are holding their car show again this year and asked me to set my bike up again. That's on the 27th.
About a week ago, one of the local tv stations ran a story about a local woman who is trying to raise money so she can go overseas and get the "liberation" treatment. Don't get me started. but what irked me was that she yanked her team from the MS Walk in protest of the fact that the MS Society is not lobbying the government to pay for this procedure. That angered me more than anything else I've heard recently. The MS Society of Canada along with the NMSS in the US has designated 2.4 millions dollars to study CCSVI and the link it appears to have with MS (this was announced just last week). It will not be funding surgical procedures at this point because we don't know if there is a link between the two. Depending on the outcome of these initial studies, then perhaps the "liberation" procedure itself will be studied.
The media still hasn't caught on to the fact that the theory behind CCSVI is that a build up of iron in the brain because of closed off veins is what causes MS. If there are iron deposits in the brain it would take more than half an hour to clear them from the brain, but half an hour seems to be the length of time between having the procedure performed and noticing a difference in MS symptoms.
So why do some people report miraculous results from this procedure? There are a number of factors at play including the Placebo Effect, not to mention improved circulation of blood in the brain. We all know that improving the circulation of blood in the brain is going to be good for you. My thoughts about miraculous improvements all involve improving oxygenation and toxin removal (by toxin, I mean cellular byproducts like waste). So until the folks who have had the procedure done can show measured reduction in MS symptoms over a period of time, I stand by my idea that this treatment is not an effectual one. Not for MS, anyway. It may be an effectual treatment for a vascular condition that many people without MS have. I would love to have this treatment proven to be an effective one for MS. But you must show me the scientific evidence first.
A couple of days ago, I was one of three people on a panel for a presentation to a group of health professionals about what it's like to be a research participant. It was part of a series of lunch hour sessions set up for health workers in the Capital District Health Association (which covers all of Halifax and surrounding areas). It was teleconferenced to other sites as well in 4 or 5 other hospitals. Most of the questions had to do with how we felt as "guinea pigs", why we agreed to be in a clinical study and our likes and dislikes about the experience. All three of us were quite positive about our feelings and how we were treated. Learning why we participated was important for these folks to hear as it helps them determine how to ask future participants to be in studies. It was a very cool experience for me as I had never really given any thought to other participants' reasons for being in a study, only mine; I'm curious, I need to know stuff (which they thought was funny). One panelist was given a drug in a different form that was being measured to see if it was more effective or just as effective as it's regular form. The other panelist was in a similar type study. In my case, in my first trial, this was one of the first disease modifying drugs (the other being Copaxone) for MS. Plus, I was in a Phase 3 trial which had the chance of me being on a placebo. The other studies have involved the course of my MS or looking for genetic markers, so have involved MRIs and blood work (both now a walk in the park for me).
And finally, on the bug front, it's almost SUMMERTIME!! Which means warmer evenings and lots of night time bugs. Like june bugs, face down on the pavement trying to drill their way to China. Or carrion beetles searching for meals. Or moths beating themselves against the building under the security lights - picture me below the lights after dark with my net in hand just waiting for them to get within reach. I retrieved a beautiful hawk moth last night which spent the day in my freezer. Taking a nap. In a couple of days I'll take him out, photograph him and preserve him. Pictures will be up before too long of my latest finds.
I promise not to be so lax from now on. Really.
S.
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